Thursday, May 17, 2018

And the winner is.....


May 16, 2018


PORPHYRIA POST

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2018 President's Award
Each year, the American Porphyria Foundation selects a recipient who has gone above and beyond in support of our foundation and the porphyria patient community. We are proud to present the following individuals with the President's Award 2018.

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(L to R) Brooklyn, Jared, Krista and Hailey
Congratulations to....
Nicole Castellano

Nicole is a champion for people who live with porphyria. She is exemplary at managing a difficult disease with a can-do attitude – not only for herself, but by encouraging others. Nicole trained and ran the Chicago Marathon, never an easy task, let alone while managing AIP. She used the experience to raise funds for the APF – and every step of her training was filled with honesty and awareness (and videos!) about the burden of living with AIP. Thank you, Nicole, for all you have done to educate others and raise awareness!

Jared Ulmer

You may know him as Porphyria J! Jared has used his artistic talent and lively sense of humor to create the Porphyria J video series (vlog), focused on creating community and awareness around Porphyria. Available on the APF YouTube channel, each video focuses on a different area of living with EPP – What is Porphyria? A Day in My EPP Live! Not Alone. Travelling with EPP...and many more. Jared also ran the Super Spartan Race – of course, he archived that experience! Thank you, Jared - we look forward to where your creativity takes you next. Until then, “Seek Shade and Stay Happy!”



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Contact Information

Is your contact Information up to date?
If not please give us a call @ 866-APF-3635 or Email to porphyrus@porphyriafoundation.com

American Porphyria Foundation| 1.866.APF.3635 | porphyriafoundation.org

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