Friday, July 21, 2017

Organizations around the world unite for Porphyria links

The following organizations have websites in English
The American Porphyria Foundation has a very extensive website, including a section for medical staff: www.porphyriafoundation.com

The Australian Porphyria Association is at www.porphyria-australia.org
The following sites have web in their own language:
Swedish Porphyria Association: home.swipnet.se/rmp
Norway: Norsk Porfyriforening: www.porfyri.no
Porphyria Association Denmark: www.porfyriforeningen.dk
Italian Porphyria Association: www.amapo.it
Dutch EPP Foundation: www.epp.info
EPP Germany (who also cover other types of porphyria) www.epp-deutschland.de
Porphyria Association of Poland: www.porfiria.pl
France: Association Française des Malades Atteints de Porphyries: www.porphyries-patients.org
Spain: Asociación Española de Porfiria: www.porfiria.org


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