Friday, July 21, 2017

Organizations around the world unite for Porphyria links

The following organizations have websites in English
The American Porphyria Foundation has a very extensive website, including a section for medical staff:

The Australian Porphyria Association is at
The following sites have web in their own language:
Swedish Porphyria Association:
Norway: Norsk Porfyriforening:
Porphyria Association Denmark:
Italian Porphyria Association:
Dutch EPP Foundation:
EPP Germany (who also cover other types of porphyria)
Porphyria Association of Poland:
France: Association Française des Malades Atteints de Porphyries:
Spain: Asociación Española de Porfiria:

No comments:

Post a Comment

Athi Koti AIP Experience

Type of Porphyria:  Acute Intermittent Porphyria (AIP) Sive Ngalo of Ekasi Hub interviewed Athi Koti. Below is my story       ...