Friday, April 14, 2017

What's Your Story?


What's your story?
WINK News, Southwest Florida's News Leader has chosen to highlight 
Sharon Dill's story on her fight with Porphyria and the challenges that many 
face on a daily basis.
 YOU have a story!
YOUR story is important!
YOUR story is NEEDED!
 Share it TODAY!
Sharing your story can definitely raise awareness in your communities.
Get involved TODAY!
Share your story with:
American Porphyria Foundation,
Local Media Outlets and
Local Newspapers!
National Porphyria Awareness Week
April 22-29, 2017
Contact the APF today at 1.866.APF.3635 or porphyrus@porphyriafoundation.com
 Porphyria Awareness Week
"Remember....Research is the key to your cure!"

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Here is one to print and share with your Doctors Overview from: Herbert L. Bonkovsky, M.D., Carolinas Health Care System

Porphyria What are porphyrias? Porphyrias are rare disorders that affect mainly the skin or nervous system and may cause abdominal pa...