Friday, April 7, 2017

NPAW April 2017 EPP Video

Our European friends have created a small video to raise awareness about 
EPP and Scenesse.
Take a look!
What are you going to do to raise awareness in your community? We want YOU to get involved.
The APF will help you accomplish your own activity by providing:
Porphyria Brochures,
Porphyria fact sheets,
Porphyria Live DVDs,
Information to gain media attention,
PowerPoint presentations and MUCH MORE!
Call the APF TODAY! 1.866.APF.3635

"Remember....Research is the key to your cure!"

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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...