Wednesday, April 19, 2017
#NPAW 2017 Cookie & Cake Anyone?
Cookie Cake anyone?
The Fleegel Family have participated in T.V. shows, FDA presentations and even decorated their very own porphyria cookie cake. YUM!!
There are all sorts of ways to enhance awareness in your community!
What are you going to do to raise porphyria awareness? We want YOU to get involved.
The APF will help you accomplish your own activity by providing:
Porphyria fact sheets,
Porphyria Live DVDs,
Information to gain media attention,
PowerPoint presentations and MUCH MORE!
Contact the APF TODAY at 1.866.APF.3635 or 713.266.9617
"Remember....Research is the key to your cure!"
Here is one to print and share with your Doctors Overview from: Herbert L. Bonkovsky, M.D., Carolinas Health Care System
Porphyria What are porphyrias? Porphyrias are rare disorders that affect mainly the skin or nervous system and may cause abdominal pa...
How To Make The Perfect Salad APR 9, 2013 BY RECIPE REHAB Whether you’re a vegetarian, foodie, health-conscious mom, busy profess...
Accused of Being a Hypochondriac, Lisa is Finally Diagnosed with Acute Intermittent Porphyria- Global GenesAccused of Being a Hypochondriac, Lisa is Finally Diagnosed with Acute Intermittent Porphyria A swollen stomach...
The Dateline NBC documentary "Out of the Shadows" featuring EPP has been nominated for an Emmy Award!The Dateline NBC documentary "Out of the Shadows" featuring EPP has been nominated for an Emmy Award! The AP...