Wednesday, April 19, 2017
#NPAW 2017 Cookie & Cake Anyone?
Cookie Cake anyone?
The Fleegel Family have participated in T.V. shows, FDA presentations and even decorated their very own porphyria cookie cake. YUM!!
There are all sorts of ways to enhance awareness in your community!
What are you going to do to raise porphyria awareness? We want YOU to get involved.
The APF will help you accomplish your own activity by providing:
Porphyria fact sheets,
Porphyria Live DVDs,
Information to gain media attention,
PowerPoint presentations and MUCH MORE!
Contact the APF TODAY at 1.866.APF.3635 or 713.266.9617
"Remember....Research is the key to your cure!"
Each form of porphyria results from mutations in one of these genes: ALAD , ALAS2 , CPOX , FECH , HMBS , PPOX , UROD , or UROS . ...
Erythropoietic Protoporphyria What is erythropoietic protoporphyria? The word ‘erythropoietic’ means associated with red blood cells (‘...
#PAW2018 This year, each day we will bring you a member story of each type, a Medical Fact on each type, Medications approved ...
Happy Thanksgiving everyone 2017