Friday, April 21, 2017

National Porphyria Awareness Week: April 22 - 29, 2017

NPAW 2017

Let's Raise Porphyria Awareness!

National Porphyria Awareness Week: April 22 - 29, 2017

Jake Velasquez will be hosting an APF fundraiser to raise awareness for porphyria in the New York City area. Stay tuned for details!
Candace Colbert hand distributed a number of brochures and EPP fact sheets to local hospitals and physician clinics in her area.

Think about what you can do to heighten awareness!

National Porphyria Awareness Week provides each of YOU with the opportunity to enhance porphyria awareness in your local and medical communities. 

The APF can help you accomplish this goal by providing materials:
  • Porphyria Brochures
  • A Porphyria Live DVD
  • Fact sheets
  • A PowerPoint Presentation
  • Information for Grand Rounds
  • Ideas to set up Medical Seminars
  • Ideas to exhibit at a Health Fair
  • Information to gain press
  • Doctor packets sent to your doctors
  • Press Releases

Contact the APF today to get involved at 1.866.APF.3635 !

"Remember....Research is the key to your cure!"

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Genetic Changes in Porphyria

Each form of  porphyria  results from mutations in one of these genes:  ALAD ,  ALAS2 ,  CPOX ,  FECH ,  HMBS ,  PPOX ,  UROD , or  UROS . ...