Thursday, April 27, 2017
Abdul Waheed Butt CEP
Abdul Waheed Butt
Type of Porphyria:
Congenital Erythropoietic Porphyria (CEP)
Now my age is 21 , and there are no special effect on me . Doctors say to avoid sunlight and that my body is completely fine.. Only my hands and mouth are affected from the disease.
If you can help me to get the treatment, I never forget your this faith work. God Bless U.
Each form of porphyria results from mutations in one of these genes: ALAD , ALAS2 , CPOX , FECH , HMBS , PPOX , UROD , or UROS . ...
Erythropoietic Protoporphyria What is erythropoietic protoporphyria? The word ‘erythropoietic’ means associated with red blood cells (‘...
#PAW2018 This year, each day we will bring you a member story of each type, a Medical Fact on each type, Medications approved ...
Happy Thanksgiving everyone 2017