Thursday, April 27, 2017
Abdul Waheed Butt CEP
Abdul Waheed Butt
Type of Porphyria:
Congenital Erythropoietic Porphyria (CEP)
Now my age is 21 , and there are no special effect on me . Doctors say to avoid sunlight and that my body is completely fine.. Only my hands and mouth are affected from the disease.
If you can help me to get the treatment, I never forget your this faith work. God Bless U.
Bright Ideas! This is a place for kids to learn from others with EPP, to share their own tips and tricks on things like what to wear...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
4. The Pain Scale Is Useless to Us There’s that pain scale, numbered one through ten, with increasingly dour expressions on the faces...