Friday, March 24, 2017
National Porphyria Awareness Week (NPAW) is right around the corner.
Introducing “Lighting the Moment 2018” Introducing “Lighting the Moment 2018” Some of the best moments we can have in our lives tend ...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
4. The Pain Scale Is Useless to Us There’s that pain scale, numbered one through ten, with increasingly dour expressions on the faces...