Thursday, February 2, 2017

The FDA Meeting for Acute Porphyrias is Weeks Away!

The FDA Meeting for Acute Porphyrias is Weeks Away!
The FDA Meeting for Acute Porphyrias is quickly approaching, but there is still time to register! We need as many patients to attend as possible and tell the FDA their experience about porphyria, treatment, critical needs, etc.
Please let Jessica at the APF know that you are planning to attend. She can be reached by email at or by phone at the APF office at 866-APF-3635 or 713-266-9617. There are also travel scholarships available for those that need financial assistance in order to attend this important meeting. Contact the APF office to apply today!
If you are still interested in reserving a hotel room in the APF room block, the deadline is MONDAY, FEBRUARY 6th. There are a limited number of rooms available, and they are first come, first serve. Contact the APF office for instructions on how to reserve your room.
Please do not hesitate to contact us if you have ANY questions surrounding this important event.
Dear Friends, The APF will be hosting a Patient Focused Drug Development (PFDD) meeting for the Acute Porphyrias on Wednesday, March 1, 2017 at the…

1 comment:

  1. I am so excited to be able to attend a be a voice for all of us Porphyria Patients. I'm really praying for all of us attending to make such an impact that this drug will be approved and available ASAP. It is a new Much Needed HOPE !!


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