Sunday, February 26, 2017

PFDD Meeting Agenda

We are only DAYS away!
We have attached the link for the PFDD Meeting Agenda for your review. Here is the link:
If you are planning to speak at the FDA Meeting, please submit your speech to the APF  TODAY to, so that we can know where to place you within the program!!
We can't wait to see everyone!!

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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...