Sunday, February 26, 2017

PFDD Meeting Agenda

We are only DAYS away!
We have attached the link for the PFDD Meeting Agenda for your review. Here is the link: http://www.porphyriafoundation.com/sites/default/files/PFDD-Meeting-Agenda.pdf
If you are planning to speak at the FDA Meeting, please submit your speech to the APF  TODAY to lyonapf@aol.com, so that we can know where to place you within the program!!
We can't wait to see everyone!!

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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...