Friday, January 20, 2017

RSVP HERE https://www.eventbrite.com/e/patient-focused-drug-development-meeting-acute-porphyrias-registration-31068098519

We at the APF are getting very excited to see you all in Washington, D.C. in less than TWO MONTHS!  Many of you have already RSVPed directly to the APF... thank you!  In an effort to stay organized and efficient, we have created an event webpage for our FDA meeting.  Even if you have already RSVPed to us, please sign up through this website, too.  For those of you that have not RSVPed, in addition to signing up on this website, please still let Jessica at the APF know that you are planning to attend.  She can be reached by email atJessica@porphyriafoundation.org or by phone at the APF office at 866-APF-3635 or 713-266-9617.  We will keep you all up to date as the event approaches. 

Please do not hesitate to contact us if you have ANY questions surrounding this important event.

RSVP HERE



                       "Remember....Research is the key to your cure!"

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