Monday, October 17, 2016

The FDA Meeting for EPP is Less Than 3 Weeks Away!

The FDA Meeting for EPP is Less Than 3 Weeks Away!
The APF is busy preparing for the upcoming EPP meeting at the FDA on October 24th, 2016.  We are very excited about the large number of attendees and hope even more people RSVP to us in the coming weeks.
When registering for the FDA meeting, there is an option to indicate if you are interested in participating in a panel.  If you have signed up to participate in the panel during the meeting, you should have received an email with a list of discussion questions from Meghana Chalasani (FDA meeting coordinator), in addition to your registration confirmation email.  These questions must be answered and returned to Ms. Chalasani.

The deadline to submit your answers for the panel has expired.

You will be notified of your panel status at least 1 week in advance of the meeting.  If you have signed up to speak at the panel, but did not receive the follow up email from Ms. Chalasani, then you are not being considered for the panel.  You must contact Ms. Chalasani to receive the questions.

**PLEASE let the APF know if you are selected for the panel.  If you are still unsure whether or not you can attend this important meeting, feel free to contact Jessica@porphyriafoundation.org with any questions/comments you have.  We are excited to meet everyone in a few short weeks!

As a reminder, the deadline to register for the FDA Meeting in person OR via webcast is Monday, October 17th, 2016!  
If you are not registered, you cannot attend the meeting, so be sure to register ASAP!  Visit this website for registration:



"Remember....Research is the key to your cure!"




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