Wednesday, June 8, 2016

Update Announcements!

Ariel Lager will be hosting the next APF Patient Education Meeting in Philadelphia THIS Saturday, June 11th. There will be a presentation by porphyria expert, Dr. Manish Thapar. This is a great opportunity to have your questions answered by an expert and meet with others that share your experiences.
Bring your family and friends! Everyone is welcome!
Please RSVP to Ariel Lager at 215-498-9002 or to reserve your spot soon as possible!

3:30-5:30 PM EST
1528 Walnut St, 21st Floor
Philadelphia, PA 19102

The "Moo've It In The Moonlight" Run in Burlington, NC has been POSTPONED. We will send out updated information as soon it is available.

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Genetic Changes in Porphyria

Each form of  porphyria  results from mutations in one of these genes:  ALAD ,  ALAS2 ,  CPOX ,  FECH ,  HMBS ,  PPOX ,  UROD , or  UROS . ...