Wednesday, June 22, 2016

Patient Meet in Philadelphia

Over the weekend, Ariel Lager hosted a successful patient meeting in Philadelphia.
There was a great turnout and Dr. Manish Thapar gave a wonderful presentation about the porphyrias before welcoming questions from the group. Alnylam Pharmaceuticals also made a great presentation about their current research studies.
Jessica from the APF was able to attend the meeting and was very happy to meet so many people!
**There will be another Patient Meeting in Indianapolis soon! Stay tuned for more information!**
Please let the APF know if you'd like to host a meeting in your area!
 If you would like to receive the Apf E-News that contains information about Events, Research News, Research opportunities, and much much more please join the APF: http://www.porphyriafoundation.com/content/join-apf
"Remember....Research is the key to your cure!"
American Porphyria Foundation added 3 new photos.
Published by Rob Saupe'6 mins
Over the weekend, Ariel Lager hosted a successful patient meeting in Philadelphia.
There was a great turnout and Dr. Manish Thapar gave a wonderful presentation about the porphyrias before welcoming questions from the group. Alnylam Pharmaceuticals also made a great presentation about their current research studies.
Jessica from the APF was able to attend the meeting and was very happy to meet so many people!
**There will be another Patient Meeting in Indianapolis soon! Stay tuned for more information!**
Please let the APF know if you'd like to host a meeting in your area!
 If you would like to receive the Apf E-News that contains information about Events, Research News, Research opportunities, and much much more please join the APF: http://www.porphyriafoundation.com/content/join-apf
"Remember....Research is the key to your cure!"

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