Thursday, June 30, 2016

Jared Ulmers vlog called Porphyria J Check him out

APF Member, Jared Ulmer, has started a vlog on YouTube called Porphyria J.  It's a vlog devoted to creating community and awareness around Porphyria, specifically EPP, and how he lives with it during the sunniest and hottest season of the year.  The first episode of the 13 week series, called Summer Shade, aired last night.
Comment, Like, Share and Subscribe for new episodes every Tuesday!  
Jared will be covering a spectrum of topics and we hope you join him on his journey.

Check out the Porphyria J YouTube Channel here: https://www.youtube.com/channel/UC7SYTLc6RSGptlHHQ8Aapmg
Episode 1 of Summer Shade can be found here:


"Remember....Research is the key to your cure!"

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