Upcoming Patient Educational MeetingDate and Time: Sunday, December 6, 2015, 4:00 - 6:00 PM ET* Presentations by World Renowned Porphyria Experts. We are expecting to have Dr. John Phillips, Dr. Charles Parker (University of Utah School of Medicine) and Dr. Samuel Silver (University of Michigan Medical School) present at the meeting.* Opportunity to Participate in a Q & A Session.* Meet Friends who Share Your Experiences with Porphyria.* View the Latest Educational Material from the American Porphyria Fdn.Location: Ramada Plaza Resort & Suites International Drive Orlando6500 International Drive, Orlando, FL 32819-8218You are welcome to bring family members and friends. Please RSVP: 1.866.APF.3635 or Email: porphyrus@porphyriafoundation. com
"Remember....Research is the key to your cure!"
Wednesday, December 2, 2015
Upcoming Patient Educational Meeting
Porphyria Post ...
Erythropoietic Protoporphyria What is erythropoietic protoporphyria? The word ‘erythropoietic’ means associated with red blood cells (‘...
#PAW2018 This year, each day we will bring you a member story of each type, a Medical Fact on each type, Medications approved ...
Happy Thanksgiving everyone 2017