Wednesday, December 2, 2015

Upcoming Patient Educational Meeting

Upcoming Patient Educational Meeting
Date and Time:  Sunday, December 6, 2015,  4:00 - 6:00 PM ET
* Presentations by World Renowned Porphyria Experts. We are expecting to have Dr. John Phillips, Dr. Charles Parker (University of Utah School of Medicine) and Dr. Samuel Silver (University of Michigan Medical School) present at the meeting.
* Opportunity to Participate in a Q & A Session.
* Meet Friends who Share Your Experiences with Porphyria. 
* View the Latest Educational Material from the American Porphyria Fdn.
Location: Ramada Plaza Resort & Suites International Drive Orlando
6500 International Drive, Orlando, FL 32819-8218
You are welcome to bring family members and friends. Please RSVP:  1.866.APF.3635  or  Email:

"Remember....Research is the key to your cure!"

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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...