Upcoming Patient Educational MeetingDate and Time: Sunday, December 6, 2015, 4:00 - 6:00 PM ET* Presentations by World Renowned Porphyria Experts. We are expecting to have Dr. John Phillips, Dr. Charles Parker (University of Utah School of Medicine) and Dr. Samuel Silver (University of Michigan Medical School) present at the meeting.* Opportunity to Participate in a Q & A Session.* Meet Friends who Share Your Experiences with Porphyria.* View the Latest Educational Material from the American Porphyria Fdn.Location: Ramada Plaza Resort & Suites International Drive Orlando6500 International Drive, Orlando, FL 32819-8218You are welcome to bring family members and friends. Please RSVP: 1.866.APF.3635 or Email: porphyrus@porphyriafoundation. com
"Remember....Research is the key to your cure!"
Wednesday, December 2, 2015
Upcoming Patient Educational Meeting
Introducing “Lighting the Moment 2018” Introducing “Lighting the Moment 2018” Some of the best moments we can have in our lives tend ...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
4. The Pain Scale Is Useless to Us There’s that pain scale, numbered one through ten, with increasingly dour expressions on the faces...