Patient Meeting ResultsThe Patient Educational Meeting, that we held last weekend in conjunction with the ASH convention, was a huge success. We would like to thank the doctors who has presented on the Meeting in Orlando, FL as well as our long-term member Amy Chapman for helping us to organize it. Also, special thanks to everyone who attend with their families and friends. We hope all who attend had a good experience.Watch the APF E-news for the announcements about the upcoming meetings. Make sure your membership is up to date, so you receive all news."Remember....Research is the key to your cure!"
Friday, December 11, 2015
Patient Meeting Results
Bright Ideas! This is a place for kids to learn from others with EPP, to share their own tips and tricks on things like what to wear...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
4. The Pain Scale Is Useless to Us There’s that pain scale, numbered one through ten, with increasingly dour expressions on the faces...