Patient Meeting ResultsThe Patient Educational Meeting, that we held last weekend in conjunction with the ASH convention, was a huge success. We would like to thank the doctors who has presented on the Meeting in Orlando, FL as well as our long-term member Amy Chapman for helping us to organize it. Also, special thanks to everyone who attend with their families and friends. We hope all who attend had a good experience.Watch the APF E-news for the announcements about the upcoming meetings. Make sure your membership is up to date, so you receive all news."Remember....Research is the key to your cure!"
Friday, December 11, 2015
Patient Meeting Results
Porphyria Post ...
Erythropoietic Protoporphyria What is erythropoietic protoporphyria? The word ‘erythropoietic’ means associated with red blood cells (‘...
#PAW2018 This year, each day we will bring you a member story of each type, a Medical Fact on each type, Medications approved ...
Happy Thanksgiving everyone 2017