Wednesday, December 16, 2015
Patient Education Meeting in Orlando Florida a huge success
The Patient Educational Meeting that we held last weekend in Orlando Florida in conjunction with the ASH convention, was a huge success. We had a great turn out there was standing room only! A special thank you to Dr’s Phillips, Parker and Silver, and the Recordati Company for coming to the meeting. The questions asked by the members were excellent, showing that the more you ask and the more you learn then the better equipped you are to care for yourself! We would like to thank the doctors who presented at the meeting as well as our long-term APF member Amy Chapman for helping us to organize it. Also, special thanks to everyone who attend with their families and friends.
Watch the APF E-news for the announcements about the upcoming meetings. Make sure your membership is up to date, so you receive all news.
Please get involved and take action now and sign up for research so that we can learn more and ultimately find a cure!
“Research….is the key to your cure!”
How To Make The Perfect Salad APR 9, 2013 BY RECIPE REHAB Whether you’re a vegetarian, foodie, health-conscious mom, busy profess...
Rocco suffers from erythropoietic protoporphyria (EPP), a genetic disorder that makes skin extremely sensitive to sunlight. The often almos...