Thursday, December 17, 2015

EPP Patient Letter Writing Campaign Update

EPP Patient Letter Writing Campaign Update

Dear EPP Family,
As you all know, we are collecting EPP patient experiences in letter-form so that we can take them collectively to the FDA to ask them for the accelerated approval of the drug Afamelanotide. To date we have collected 214 patient letters with a few more on the way.
Please take a minute to write a letter today. You can scan or/and send it to us by replying to this email. You can also fax it to us at 713.840.9552. Today is the very last chance to make a difference!
Your contributions to previous letter campaigns worked.  They convinced the FDA to approve Phase III of the drug trials in the USA, and our American letters helped convince the European Medicines Agency to grant approval of the drug in the European Union.  Now it is our turn to seek approval for Afamelanotide by the FDA in the USA!
If you have any questions, please reach out to the APF 713.266.9617.  Let's make this happen.  Patient advocacy works. THANK YOU FOR PARTICIPATING!

"Remember....Research is the key to your cure!"

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