Dateline NBC documentary "Out of the Shadows" linksIf you missed a Dateline NBC documentary "Out of the Shadows", about children who must avoid sunlight because of their medical conditions, you can view it online on the NBC News website:Or:
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Friday, September 4, 2015
Dateline NBC documentary "Out of the Shadows" links
#PAW2018 This is one of the hereditary hepatic porphyrias. Its inheritance is autosomal dominant. The deficient enzyme is porphobilinog...
Happy Thanksgiving everyone 2017
What is Rare Disease Day? TAKE A LOOK AT THE EVENTS HAPPENING AROUND THE WORLD FOR RARE DISEASE DAY! Find out how yo...
#PAW2018 This year, each day we will bring you a member story of each type, a Medical Fact on each type, Medications approved ...