Wednesday, August 12, 2015

Update: Caretaker Support Forum

Caretaker Support Forum

New APF Caretaker Support Forum   


Warren Hudson, who serves on the APF Board of Directors, has agreed to head our Caretaker Support Forum for spouses or partners who help their loved one cope with porphyria. To read more about Warrens story as a caretaker for a loved one with AIP click here.

The Caregiver Support Group strives to provide a forum to ask questions, share advice, experiences and provide a sounding board for those going through similar circumstances.

Our goal is to eventually provide multiple resources to assist caregivers in their day-to-day lives. This is your community and your input will help shape this service. Whether you are a spouse, partner, relative or friend of a porphyria patient, we want to hear from you. Contact the American Porphyria Foundation or email us at apfcaregiver@aol.com for more information.

We respectfully request that only caregivers of patients in the active process of diagnosis or with a diagnosis of a porphyria participate in this group.


                              "Remember....Research is the key to your cure!"

No comments:

Post a Comment

Health & Happiness!

Happiness & health Click to share on Facebook (Opens in new window) Click to share on Twitter (Opens in new window) Click to sh...