Tuesday, August 4, 2015

The "MOVE IT IN THE MOONLIGHT RUN" In Burlington, NC on August 28, 2015 UPDATED INFO***

  The "MOVE IT IN THE MOONLIGHT RUN" In Burlington, NC on August 28, 2015

The location of the run is now determined: Chick-fil-A University Commons at 1477 University Dr. Burlington, NC 27215
Please register and join the awareness run. It was organized at night so that people with photosensitive porphyrias can participate too.
You can find out more details and information about the run on the website:



 "Remember....Research is the key to your cure!"

No comments:

Post a Comment

#NPAW2017 Ryan Taal & EPP~ Let's storm the doors down!

I have suffered from EPP since I was born. Shortly after I was born, my parents went camping and had me out in the sun. I very quickly beg...