Tuesday, July 14, 2015

Sign Up Today for Our Patient Advocacy Summit Information Session Webinar Global Genes

Sign Up Today for Our Patient Advocacy Summit Information Session Webinar  
July 15, 2015 - 2:00 pm PT / 5:00 pm ET
Register here for the information session.

Find out what you need to know about attending the RARE Patient Advocacy Summit on September 24/25, 2015, either in person or via livestream webcast by attending our information session webinar. You'll learn more about the topics we are covering, speakers, logistics, and a sneak peek of upcoming programs for Foundation Alliance partners and patients.

Connect. Educate. Engage. Achieve.

Nicole Boice, Global Genes CEO, and Kym Kilbourne, VP of Advocacy, will be sharing more details about our summit's jam-packed agenda, registration information, and how to participate live via livestream if you are not able to make it in person.  They will also be available to answer any questions you may have regarding the summit and our Tribute to Champions of Hope Gala.

If you have been recently diagnosed, are building a disease community, thinking about funding early research, actively engaged in developing a treatment, or have been advocating in rare disease for decades this is the meeting you need to attend!

If you are not able to make it at the time above, please register here, and we will send you the slides and recorded webinar that you may view at a later time.

We hope to see you at the Summit!

Kym, Carrie & Li

Kym H. Kilbourne                                         
VP, Patient Advocacy                                    

Carrie Ostrea
Manager, Advocacy/Parent Advocate

Lisa Schill
Advocacy Ambassador/Parent Advocate

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