Friday, July 10, 2015

Media Attention EPP PATIENTS WANTED 1000

Media Attention

We would like to thank all EPP patients and family members who have been able to bring their stories to federal and local TV and print media.
Please contact your local radio stations, TV channels and newspapers if you haven't done it yet and share your story about your type of porphyria! If you need any assistance, supplies or awareness materials give us a call at 713.266.9617.


                                                              ****ATTENTION!****

The APF is looking for at least 1,000 EPP patients NOW! We are organizing a giant push for the FDA. Please message me your name, address, and email address or call the APF office at 1-866-APF-3635. Thank you all! 



"Remember....Research is the key to your cure!"

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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...