Wednesday, July 29, 2015
Alnylam and Collaborators Publish Pre-Clinical Results with ALN-AS1, an RNAi Therapeutic Targeting Aminolevulinic Acid Synthase-1 (ALAS-1) for the Treatment of Hepatic Porphyrias, in the Proceedings of the National Academy of Sciences
We need research volunteers, if you have an Acute Porphyria and would like more information on this and other studies please contact Natalia APF 1-866-APF-3635
Introducing “Lighting the Moment 2018” Introducing “Lighting the Moment 2018” Some of the best moments we can have in our lives tend ...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
4. The Pain Scale Is Useless to Us There’s that pain scale, numbered one through ten, with increasingly dour expressions on the faces...