Friday, July 3, 2015

ABC Nightline EPP and Dr. Desnick

ABC Nightline EPP and Dr. Desnick

The APF was able to secure another show on EPP. Don't miss the ABC Nightline Episode tonight featuring the Fulkerson family and Dr. Robert Desnick. More info: http://abcnews.go.com/Nightline
We have received a great deal of media attention within the last month. We had several major TV programs:  Discovery Life "Diagnose Me" covering AIP and NBC "Dateline: Out of the Shadows" covering EPP. We also had a show on ABC "Good Morning America" and on Telemundo channel.
Thank you for sharing links, news and educating society on porphyrias. All the media attention has been greatly helped enhance porphyria education and awareness.




"Remember.... Research is the key to your cure!"

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Emergency Room Guidelines for Acute Porphyrias

Emergency Room Guidelines for Acute Porphyrias http://www.porphyriafoundation.com/sites/default/files/ERGuidelinesAcutePorphyria%201.pdf ...