Wednesday, June 10, 2015
Natalia Nikova Summer Vacation and AIP
Acute Intermittent Porphyria
Beware of Mountains
My name is Natalia Nikova. I was born in Russia in St. Petersburg. I have AIP.
I went through horrible surgeries and sufferings in Russia before I was properly diagnosed. That happened when I was between 25 and 30 years old.
After that I was receiving capsules of Adenil through the Red Cross for about four years and injecting myself two times a day. My recovery was very slow but at the age of 39 I started to feel better and I was able to immigrate to the USA with my daughter and my mother.
I managed to change my profession from Choral conductor to a computer programmer to support my family and my porphyria's symptoms almost disappeared. Now I am 63 years old and in August 2004 all of a sudden I had a reminder. I and my husband went to Peru. I got immediately sick in Cusco from the high altitude but the altitude sickness was greatly aggravated by porphyria. In addition to a headache and shortness of breath I had nausea, high fever, high blood pressure and grazing pain in my stomach. In fact I became so sick that we had to change our entire itinerary and move to lower regions in Peru. That was not too much fun because I am a bird watcher I was looking forward to go to Colca Canyon to see Andean Condor. Even after we returned from Peru I was sick for two weeks with general weakness.
I hope that sharing this story will help some people in planning their vacation.
"Remember....Research is the key to your cure!"
How To Make The Perfect Salad APR 9, 2013 BY RECIPE REHAB Whether you’re a vegetarian, foodie, health-conscious mom, busy profess...
Rocco suffers from erythropoietic protoporphyria (EPP), a genetic disorder that makes skin extremely sensitive to sunlight. The often almos...