Monday, April 20, 2015

Thank You for supporting #NPAW

** Thank You **
Thank you all for helping make this a fantastic National Porphyria Awareness Week.
We've had some great Events that took place this week and many more that are in the works.
Stay tuned for News about the past and future events.
~ It doesn't End here ~
Please take every opportunity to share this new knowledge and the resources you now have about Porphyria at your disposal.
Just like little Abby May in this photo, stand up for your loved ones and speak out.
Correct information is critical for proper Porphyria care.


"Remember....Research is the key to your cure!"

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