Saturday, April 11, 2015

#‎NationalPorphyriaAwarenessWeek‬ ‪#‎NPAW2015‬ has officially started!

Today we have 100's of people coming to the Shadow Ride Kick Off Event in Pawhuska Oklahoma to enjoy a Barbeque, with live music, fun games and a time to get to know one another.
https://www.facebook.com/events/745826892205498/
Tomorrow we are Hosting a Patient Education Meeting in Oklahoma City, OK with porphyria expert, Dr. Sylvia Bottomley. The meeting will take place from 2-5 pm at the fantastic National Cowboy and Western Heritage Museum.
https://www.facebook.com/events/1611698132408353/
It's time to Speak Up ~ Speak Out ~ Educate
Share your Story ~ Get Involved.

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