- Our quarterly newsletter — news about porphyria research and clinical studies, scientific meetings and member get-togethers, and stories about the doctors working in the porphyria field and about members like you;
- Attend APF Patient Educational meetings with Experts Nationwide;
- Receive weekly E-News in your email;
- Access to the APF In Touch network — the ability to connect with others who share your diagnosis;
- Free participation in telephone conference calls with top researchers in the porphyria field;
- Knowledge—that you are an important part of keeping reliable medical information about porphyria available to those who are newly diagnosed, or at a crossroads in their porphyria treatment, and frightened;
- And much more!
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Houston, TX 77056
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