Friday, March 6, 2015

World RARE Disease Day

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Dear Global Genes Friends & Supporters,

We wanted to thank YOU for helping make World Rare Disease Day 2015 a huge success! Celebrated by patients, advocates, their friends and families, co-workers, caregivers, schools, doctors, nurses, biotech & pharmaceutical companies and rare disease foundations–supporters turned up and dressed down (in jeans, of course!) to spread awareness all over the world!

We would like to learn more about your World Rare Disease Day activities. In an effort to capture the highlights of all the events that happened around the world, please help us by responding to 
this survey. We would love to know how you celebrated and what you accomplished.  We want to hear from you so we can share best practices with others, show the impact our awareness efforts made and ensure next year's World Rare Disease Day is the best ever!  
Please respond by Thursday, March 7th.
Did you host or attend an event? Did your school or office participate in a Wear That You Care day? Did you hold a fundraiser? Whether you simply wore a ribbon or decked the halls in denim blue–we want to hear from you!
Send us your pictures, stories and accomplishments for this year’s World Rare Disease Day using the link to the form below. Your story will be included in an upcoming RARE Recap post on the new RARE Daily!
Take our survey here: http://globalgenes.org/wrdd-recap-2015/
 
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Global Genes is a 501(c)(3) nonprofit organization advocating for rare disease globally.
If you would like to share what you did for this special day write us an email to Amy.APF@gmail.com


"Remember....Research is the key to your cure!"

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