Friday, March 20, 2015

National Porphyria Awareness Week!

National Porphyria Awareness Week!

National Porphyria Awareness Week (NPAW) is just around the corner, April 11-18! It is a very exciting time of the year.  NPAW is the week that the APF collaborates with YOU to help you enhance porphyria awareness in your own communities and the medical professionals who practice there.  Over the past years, some of YOU have participated in health fairs, seminars, fundraising and media events.  Terri Witter, Amanda Boston, Marianna Donaghy, Amanda Rich, Stefanie Rehmann and many, many others have distributed Porphyria Fact Sheets, brochures and doctor packets to their physicians.
One of the important means to enhance awareness is to contact local media and ask them to run a story about you and your journey or your awareness event.  This year's Shadow Ride is a good story, too, to use to draw attention to porphyria.  
The APF will help you accomplish your own activity by providing materials including: Porphyria Brochures, A Porphyria Live DVDs, Fact sheets, Powerpoint Presentations and materials for medical seminars, as well as press releases for local newspapers and television and other suggestions. Even if you cannot organize an event, the materials are invaluable to mental health professionals, hospitals and all types of health organizations. Call us: 713.266.9617.

                           "Remember....Research is the key to your cure!"

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