Sunday, February 8, 2015

National Porphyria Awareness Week is Coming Up!

National Porphyria Awareness Week is Coming Up!

Our APF members set a great example of different activities that increase awareness in their local communities. Let's continue the tradition! In preparation for NPAW, April 11-18, 2015, the APF will send you a packet with brochures, a complimentary DVD and extra materials if you would like to distribute information in your area.
NPAW is the time we ask all people with porphyria to bring awareness to your own cities. NPAW has been very successful for the past ten years. Let's make this year the greatest! The Shadow Ride event and patient meeting in Oklahoma City, OK will be the Kick Off. We will post suggestions for what you can do on our Facebook pages and in E-news. Please let us know your address or call the APF office and get involved: 866.APF.3635.
You can be involved in any way that works with your schedule, resources, and interests! Join the awareness movement in your local community! Together we can make a difference. Education and awareness are the first steps of treatment!

Fresh Newsletter
Our quarterly Newsletter is almost done! It contains all the latest news from the porphyria world, experiences of our members and newest announcements. The APF is able to maintain our Newsletter, physician and patient education programs and many other services because of your support. Since we do not receive government funding, we need your support and donations. We also need your new contact information if you have a new address or email.
 Please share your ideas with us.
"Remember.... Research is the key to your cure!"

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