If Finn Can Promote Porphyria Awareness, You Can Too!Finnian, nicknamed Finn, can show us a thing or two about promoting porphyria awareness. He wears his American Porphyria Foundation bandana proudly. The APF gave bandanas to all the pets, who entered the APF Pet Beauty Contest a few years ago. Finn is a 7 year old yellow lab. His mom is APF member, Kelsey Castro who says of Finn:He is my best buddy! He is always by my side, especially when I'm not feeling well... I think he can sense it. I got him when I was 14 and in high school, and I'm now in college. Finn has been my best friend through lots of hard times. His favorite thing to do is go on hikes at a local nature reserve by my house and curling up by our wood stove in the winter.We also ask you to take every opportunity to spread the word about porphyria. Your effort can be as simple as purchasing an APF T-shirt or giving out medical information to your doctors or showing the APF Porphyria Live video to your family and friends. Every community needs to hear about porphyria, and you are the person to do that in your community. Please contact the APF for supplies 713.266.9617."Remember.... Research is the key to your cure!"
Thursday, February 19, 2015
If Finn Can Promote Porphyria Awareness, You Can Too!
Bright Ideas! This is a place for kids to learn from others with EPP, to share their own tips and tricks on things like what to wear...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
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