Here are some videos on You Tube about Porphyria.
Here are some videos to understanding- What is Porphyria? How it can be treated, how Panhematin is prepared, and Expert Doctors explanations and personal stories.
An Expert Opinion
How to Prepare and Admin Panhematin Lindsey
Desiree Lyon APF
Amy Chapman AIP
John Chamberlayne VP
Dr. Lisa Kerberg AIP
British Porphyria Association - Sue Burell AIP
Tracey Yelen AIP
"Remember.....Research is the key to your cure!"