Thursday, January 29, 2015

A Poem By Georgina Davis

Georgina Davis, who is a member of the APF EPP Facebook Group, lives north of London in Hemel Hempstead Hertfordshire. She is a very creative woman, who is quite adept at drawing, painting portraits, most crafts and writing poetry, which she began 25 years ago, after a bad bout of her other disease, Multiple Sclerosis. Georgina writes poetry to express her feelings and help others understand her EPP. She says that the Facebook groups were a Godsend for her and has thanked the APF for its efforts to promote understanding of the porphyrias to doctors and the general public and most of all for bringing porphyria people together to reduce the loneliness. 

Look at the lucky people having fun. If we dare to fit in, They can go out in the sun, My oh my, watch out for the pain to begin. Scantily clad in the heat of the day. The slightest exposure can cause such pain If we did that, oh how we’d pay. That we don’t want to go out again. But, we are rare, not many like us, Feeling as though our bloods on the boil, Who when the sun comes out, And, lack of understanding for all our toil. We ‘make a fuss.’ Swelling and itching all part of the course, We have a genetic condition you see, When into the sun we are forced. And it goes by the name of, With large floppy hats, long sleeves and gloves, Erythropoietic Protporphyria aka EPP. Covered all up from our heads to our toes. Isolation is its game, What a funny sight to see, While others play and have fun, People like us who suffer from EPP. We hide indoors away from the sun.

 If you have a talent to use for porphyria, please contact the APF. 1-866-APF-3635

"Remember.....Research is the key to your cure!"

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