Monday, December 1, 2014

Global Genes Meeting Dec 9th

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February 28th. 2015, marks World RARE Disease Day, and it is less than 3 months away! Are you ready to raise awareness for your rare disease?

This year we are hosting a webinar on December 9, 2014, that will explore ideas to create awareness for your specific rare disease as well as for the entire rare disease community!


Topics include:
  • Hosting your own Rare Disease Day events
    • Schools
    • Businesses
    • General Community
  • Reaching out to the media to share your story
  • Advocating in Washington D.C. during Rare Disease Week
    … and more!

The World Rare Disease Day 2015 Planning Webinar:  Ideas and Suggestions to Host Your Own World Rare Disease Day Event, will be held on December 9, 2014 at 11:00 am PT. This 60 minute session has limited space and will fill up fast!

Registration is FREE, register today!

 
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