Thursday, December 4, 2014

ER KITS FOR ACUTE PORPHYRIAS & EPP KITS

ER & EPP Kits


ER and EPP kitsER Kit for the Acute Porphyrias

For the Emergency Room & Primary Care Physician (Acute porphyrias only)
• $30.00 for US residents
 
Essential documents and ER instructions you shouldn't be without! The Kit includes:
  • Safe/Unsafe Drug List. The next time the ER staff asks you if you're allergic to any meds, hand them this and they'll know for sure.
  • ER Information Form. At-a-glance sheet for ER personnel to record your essential admission information.
  • Porphyria Test Results Form.
  • Information ER physicians need to know. To accurately and confidently administer heme therapy.
  • Instructions for Shipping Samples for Porphyria Testing. Includes information on processing and shipping samples, an order form for testing, and a primer on lab testing for porhyrias.
  • Review article: Recommendations for the Diagnosis and Treatment of the Acute Porphyrias (reprinted from Annals of Internal Medicine, March 2005). This article reviews the current medical treatment guidelines for the acute porphyrias. Especially vital for physicians unfamiliar to porphyria you're likely to encounter in the ER. Good reading for your primary care doctor too.
Order by calling the APF Office: Toll free: 1.866.APF.3635.
"Remember.....Research is the key to your cure!"
 



EPP_kitEPP Kit

To help families and doctors manage EPP
• $30.00 for US residents
 
Essential education produced exclusively for EPP patients. The Kit includes:
  • EPP brochure and education. Important background information about EPP, management strategies, photosensitivity, and ways to avoid attacks.
  • ER Information Form. At-a-glance sheet for ER personnel to record your essential admission information.
  • List of leading APF EPP specialists and their contact information.
  • Sun Precautions catalog, including medical solutions for sun sensitive people.
  • Samples of light-protecting sun block and accompanying product information.
Order by calling the APF Office: Toll free: 1.866.APF.3635.

"Remember.....Research is the key to your cure!"

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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...