Monday, November 17, 2014

Reminders for all Porphyria Members

Just a reminder about our upcoming patient educational meeting in San Francisco. It will be held at Hyatt Regency Five Embarcadero Center on December 7, from 4 pm to 6 pm. You will have an unique opportunity to meet with porphyria experts Dr. Bissell and Dr. Wang and meet with fellow patients. Everyone is welcome to participate.


Please stay safe & sound this winter.  Most of the United States is covered in Storms.  Remember if you become in any emergency please contact 911 and your local authorities.  You may also want to keep a list of current medications, allergies and medical conditions that you may have handy and tell friends or family to bring this along.

If you would like to receive a patient packet or a comprehensive Dr Kit from the APF please give them a call.  Please have your name address for you and your medical care team available so that they can send it out to you.  1-866-APF-3635.

Happy Winter days to you all.



"Remember.....Research is the key to your cure!"

No comments:

Post a Comment

#NPAW2017 Marlene Brezee & AIP

Marlene Brezee It's hard to believe it's been thirty years since my diagnosis. I thought life as I had known it was over. I h...