Upcoming Patient MeetingsWe invite you, your friends and families to participate in a patient education meeting. The meeting will be held at the Carrie Hall at the Brigham and Women's Hospital on November 9, from 3 pm to 6 pm.This meeting provides an excellent opportunity for you to speak to the experts and to meet fellow-patients. Please let us know if you would like to participate.The meeting in San Francisco will be held at the Hyatt Regency Five Embarcadero Center on December 7, from 4 pm to 6 pm. Everyone is welcome to participate.Please RSVP: 1.866.APF.3635 or Email:Giving Made SimpleWe are introducing our new Donations System that helps make it easier for making donations to the APF. You can now give via text donation or online giving.Text Donations using your Smart Phone:Simply text the amount you wish to donate to 281-730-8161.Example: $5 or 5= $5.00, $10 or 10 =$10.00, etc. Choose any $ amount you wish to donate.You will then be sent a link for a one time registration for text donations.Once you've registered then your future donations are completed by simply texting the chosen giving amount to 281-730-8161.You should receive a text confirmation that your donation has been received.On-Line Giving:Our new on-line giving is very convenient and allows you to choose what you would like to apply your donation to.Example: In Memory of someone, In Honor of someone, Apply it to the PTF (protect the future program), etc...Just enter the amount you would like to donate and click the go button.You then have the option of donating as a guest or register and make it easier for future donations.You should receive an email confirmation that your donation has been received.Please follow the link: http://www. porphyriafoundation.com/ content/online-and-text-giving"Remember.....Research is the key to your cure!"
Friday, October 31, 2014
Upcoming Patient Meetings & Giving Made Simple
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Happy Thanksgiving everyone 2017