"Remember.....Research is the key to your cure!"
Wednesday, October 8, 2014
Tara Cantley and Twisted Wrist. Help support the APF Awareness Today
For every bracelet sold of this kind, I will donate $5 to the APF. I have porphyria. This is close to my heart. I have several available and can make as many as needed. Thank you! Free Shipping! There are many choices so make a donation/purchase today for a great cause. Her link is below:
Bright Ideas! This is a place for kids to learn from others with EPP, to share their own tips and tricks on things like what to wear...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
4. The Pain Scale Is Useless to Us There’s that pain scale, numbered one through ten, with increasingly dour expressions on the faces...