Monday, October 27, 2014
Exciting News for EPP Treatment
Exciting news!!! The EMA has recommended granting a marketing authorization under exceptional circumstances for Scenesse (Afamelanotide) for the treatment of erythropoietic protoporphyria (EPP). Scenesse is the first medicine for patients with this condition. We believe the FDA will approve it soon. Thanks to the Porphyria Research Consortium Experts: Karl Anderson, MD, FACP, Herbert Bonkovsky, MD, Montgomery Bissell, MD, Joseph Bloomer, MD, Robert Desnick, PhD, MD and John Phillips, PhD, and to all the research volunteers. You are all Medical Heroes! Thanks to the APF stuff as well.
Read more from the EMA meeting highlights:http://www.ema.europa.eu/ema/index.jsp?curl=pages%2Fnews_and_events%2Fnews%2F2014%2F10%2Fnews_detail_002191.jsp&mid=WC0b01ac058004d5c1
"Remember....Research is the key to your cure!"
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Rocco suffers from erythropoietic protoporphyria (EPP), a genetic disorder that makes skin extremely sensitive to sunlight. The often almos...