The American Porphyria Foundation can do just that.
If you need any help with locating a Doctor, you have a concern or need to be tested or see a Porphyria Expert in your area please contact them at 1-866-APF-3635.
To read more information about each type of Porphyria and treatment types: porphyriafoundation.com
There are many opportunities to be apart of the research programs so please call the APF. Would you like to have a cure soon, I know I would, so please get involved there are so many ways. If you would like to participate in holding a fundraiser please email me Amy.APF@gmail.com with your ideas...we have some great ideas coming in so please join us..
"Remember....Research is the key to your cure!"