Wednesday, September 3, 2014

HAVE A HAPPY WEDNESDAY EVERYONE!

Many of you are ill right now, so please take care of yourself, follow your Doctors orders and get well soon.


If you are experiencing communication problems with your Doctor and need information or to check if there is a knowledgeable doctor in your area, please call 1-866-APF-3635.

If you would like to receive a comprehensive Doctor Kit send to your current Doctor please call the APF and have your Doctors name, address and phone available.

If you would like a patient kit send to you directly please contact the APF.  Please have your name, address and phone available.

Once again the name to the American Porphyria Foundation is ~ 1-866-APF-3635.



"Remember....Research is the key to your cure!"

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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...