Have a beautiful First day of fall. To all Porphyria Patients earth wide.
May you all stay healthy and happy. Spend time with family and friends on these cool and crisp days.
If you have any questions about Porphyria please feel free to call the American Porphyria Foundation @ 1-866-APF-3635.
We have Doctor Kits and patients packets that we can send out. Please have your Doctors name and full mailing address ready. If you would like to receive a patient kit please have your full name and mailing address to.
If you like to know what research studies are out there and how you can participate in please contact the APF and ask for Natalia or Desiree @ 1-866-APF-3635.
"Remember....Research is the key to your cure!"