Wednesday, June 4, 2014


Please consider making a donation to the PTF program. Yours and your children's future health depends on each of us supporting the training of doctors who will know how to treat us and perform research when our present experts retire. We have the opportunity to fund this training now so that the present expertise is not lost. Please send your donations to the APF and mark them PTF. They will be placed in the PTF fund to be used for the training of young doctors as future porphyria experts.
Thank you for your support. If you have any suggestions or questions, please contact us at 713.266.9617.

"Remember....Research is the key to your cure!"

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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...