Wednesday, June 4, 2014


Please consider making a donation to the PTF program. Yours and your children's future health depends on each of us supporting the training of doctors who will know how to treat us and perform research when our present experts retire. We have the opportunity to fund this training now so that the present expertise is not lost. Please send your donations to the APF and mark them PTF. They will be placed in the PTF fund to be used for the training of young doctors as future porphyria experts.
Thank you for your support. If you have any suggestions or questions, please contact us at 713.266.9617.

"Remember....Research is the key to your cure!"

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Genetic Changes in Porphyria

Each form of  porphyria  results from mutations in one of these genes:  ALAD ,  ALAS2 ,  CPOX ,  FECH ,  HMBS ,  PPOX ,  UROD , or  UROS . ...