Tuesday, June 10, 2014

Are YOU Interested In Research On Rare Diseases? Event Day June 12 & 13

Hi all APF members family & friends.  If you have not signed up for the RDCRN~ contact registry or need assistance, I will be contacting you over the next two days this week Thursday and Friday- June 12 & 13 from the hours of 2-9pm Eastern time zone.
Please schedule a 10-15 minute phone call and have your date of diagnosis or approximate date with you. 
If you are unsure about what this registry is please feel free to look below and if you want to enroll yourself please feel free to do so at this link.  You can also email me your name & number to Amy.APF@gmail.com or call the APF office @ 866-APF-3635.  We really need volunteers as projects are currently running and future research projects start.  Will you show your support for research? 
Please reach out!  It’s a wonderful opportunity that you will not want to miss out on.

Are YOU Interested In Research On Rare Diseases?
Have study information sent right to your inbox!

Receive the most current information on:
·         :: open recruitment for clinical studies of your disease
·         :: opening of new clinical sites doing research on rare diseases
·         :: activities from affiliated awareness and advocacy groups
...and future opportunities to participate in research!
YOU can help in the fight against rare diseases


http://rarediseasesnetwork.epi.usf.edu/index.htm


"Remember....Research is the key to your cure!"

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