Your Help Matters!The APF is able to maintain our physician and patient education programs and many other services because of your support and donations. We are working hard to provide patients, family members, as well as doctors with the precise and correct educational information. All the publications, pamphlets and brochures were designed by our Scientific Advisory Board of porphyria experts.We strive for a better and healthy future for us and our children, thus we train 20 future experts through the APF "Protect the Future" training program. Please consider making a donation to this program. Yours and your children's future health depends on each of us supporting the training of doctors who will know how to treat the disease and perform research when our present experts retire.With your help we also fund numerous porphyria research projects (there are 8 ongoing projects now), as well as social media programs. It is easy to think that someone else can keep the APF at work, but it takes all of us. With your help, support and tax deductible donations we make it all possible. Thank you for your contribution. If you have any suggestions, questions, or you would like to make a donation, please contact the APF: 866-APF-3635.APF Members Promoting Porphyria Awareness
- The Cook brothers, Cason and Caul, will continue a HAT DAY tradition for Porphyria Awareness Week 2014. Both brothers have EPP and have set a great example about enhancing awareness of the disease in their home town of Vernon, TX. The boys will raise funds for the APF by hosting HAT DAY where everyone at their schools who wanted to participate could wear a hat in honor of the brothers and bring one dollar for the APF.
- Amanda Rich is making purple bracelets for survivors. The bracelets are handmade and can be personally designed."Remember....Research is the key to your cure!"
Wednesday, April 23, 2014
Your HELP Matters!
Bright Ideas! This is a place for kids to learn from others with EPP, to share their own tips and tricks on things like what to wear...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
4. The Pain Scale Is Useless to Us There’s that pain scale, numbered one through ten, with increasingly dour expressions on the faces...