Tuesday, April 22, 2014
The APF is YOU!
The American Porphyria Foundation is YOU! How you may ask?
Have you given thought to support one of the many Research projects going on? We have Protect the Future- Doctors Education, Research projects from answering questions to much more.
Have you told your Doctor that there is a Doctor Kit that they can get for Free from The American Porphyria Foundation! Does he/she need to know about your condition please contact them 1-866-APF-3635 for additional information.
If you have Acute type Porphyria Do you need to purchase an ER comprehensive Kit you should have one and you will have a list of all medical tests, safe/unsafe Drug lists Questions to ask your Dr and so much more it comes in a binder all ready for just 35.00 Dollars what a good value.
Have you considered making a financial donation to the APF? What about becoming a member receiving the newsletters, announcements and other valuable information. Why wait? These are some of the ways you can help a very rare cause! But it all starts with YOU!
"Remember.....Research is the key to your cure!"
Bright Ideas! This is a place for kids to learn from others with EPP, to share their own tips and tricks on things like what to wear...
Happy Thanksgiving everyone 2017
EXCITING ANNOUNCEMENT!! You can now receive FREE genetic testing (DNA) and counseling for acute porphyria. DNA can tell a person if the...
4. The Pain Scale Is Useless to Us There’s that pain scale, numbered one through ten, with increasingly dour expressions on the faces...