Wednesday, April 2, 2014

New APF Video Is Out Now- Check it out


New APF Video Is Out Now

We are glad to announce that the APF has produced a new short video on porphyria. Dr. Lisa Kehrberg, a physician and a patient who suffers from Acute Intermittent Porphyria (AIP), shared her personal experience dealing with the disease.
Dr. Kehrberg discusses a classic porphyria attack along with pain and other symptoms. Being a patient and a doctor herself, Lisa highlights the importance of appropriate tests. She further covers the importance of glucose and Panhematin as treatment options. You can watch the video by following the link below:   https://www.youtube.com/watch?v=XzLhHlcR_ro&sns=fb



"Remember....Research is the key to your cure!"

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Organizations around the world unite for Porphyria links

The following organizations have websites in English The American Porphyria Foundation has a very extensive website, including a section ...